Lupus is a challenging disease that often leaves patients feeling alone and misunderstood, challenging to recognize, diagnose and treat. This chronic autoimmune disorder can affect many organs, including the skin, brain, joints, and other internal organs. Symptoms vary widely, wax and wane and often mimic other conditions. Since the disease manifests itself in numerous different ways, patients often are misunderstood at home and in the workplace.
While many patients might not “look” sick, they may be silently managing the debilitating pain, fatigue and other symptoms associated with lupus. This can lead to a lack of understanding from friends, family members and even physicians. Lupus can be challenging to recognize, diagnose and treat. The chronic autoimmune disorder can affect many organs, including the skin, brain, joints, and other internal organs. Symptoms vary widely, wax and wane and often mimic other conditions. Background materials about the disease are available on the recently launched “the us in lupus” website at www.usinlupus.com.
Doctors and patient ambassadors from “the us in lupus” community at www.usinlupus.com are traveling to cities across the country to offer support, information, and tips for people living with the chronic autoimmune disorder and their caregivers, family and friends.
Two such advocates, Dr. Daniel Kirby and Rena Baldwin, will visit Philadelphia during Lupus Awareness Month in May to help lupus patients discuss their challenging disease – and to help forge new understanding among patients and their caregivers, family and friends.
Tuesday, May 17, 2011
Registration: 6:30 p.m.
Program start: 7:00 p.m.
Crowne Plaza Philadelphia/ Valley Forge
260 Mall Boulevard
King of Prussia, PA 19406
To register or learn more about this event log on to www.usinlupus.com or call 1-855-874-6587 to register.
These forums are sponsored by Human Genome Sciences and GlaxoSmithKline.